Jordan, a 27-year-old man with Down Syndrome, lives with his mom in a town outside of Baltimore, Maryland. I met them through a stroke of great luck via Jordan's sister Taylor. In the fall of 2020 in my graduate program at George Washington University, I was tasked with the assignment of presenting a side of the COVID-19 pandemic. I did a bit of mental meandering through how to tell that story, but kept coming back to the world of adults with disabilities. It is the theme I keep coming back to because I am often inspired by my brother Chase, who has Congenital Encephalopathy. His life experience is so different from my own, but I get a window into it through being so close to him. I wanted to tell the story of what it looks like for an adult with disabilities to navigate the COVID-19 pandemic.
Prior to the pandemic, Jordan attended in-person classes at The Arc as well as a nearby community college. He was actively involved in a bowling league, theater troupe, and cheerleading squad. Now, all of his classes and activities are meeting on Zoom. Jordan thrives in social settings, and all the chatting he normally gets to do throughout the day also works as a secondary speech therapy. Now on lockdown, all of that looks very different. Through following Jordan as he attends Zoom classes, exercises, goes on walks, and spends time with family, I attempt to tell the story of what it's like to experience the COVID-19 pandemic from Jordan's perspective.